Download Achieving Justice in Genomic Translation: Re-Thinking the by Wylie Burke, Kelly A. Edwards, Sara Goering, Suzanne PDF

By Wylie Burke, Kelly A. Edwards, Sara Goering, Suzanne Holland, Susan Brown Trinidad

This publication explores implicit offerings made through researchers, coverage makers, and funders concerning who advantages from society's funding in healthiness examine. The authors concentration particularly on genetic study and think about no matter if such learn has a tendency to minimize or exacerbate current healthiness disparities. utilizing case examples to demonstrate the problems, the authors hint the trail of genetics learn from discovery, via improvement and supply, to future health results. issues contain breast melanoma screening and therapy, autism learn, pharmacogenetics, prenatal trying out, baby screening, and adolescence suicide prevention. each one bankruptcy emphasizes the societal context of genetic examine and illustrates how technology may perhaps swap if realization have been paid to the wishes of marginalized populations. Written via specialists in genetics, overall healthiness, and philosophy, this publication argues that the clinical company has a accountability to answer neighborhood must guarantee that learn thoughts in attaining a lot wanted overall healthiness affects.

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2006). Drug discovery in jeopardy. J Clin Invest. 116(11):2837–2842. DiMasi JA, Hansen RW, Grabowski HG. (2003). The price of innovation: new estimates of drug development costs. J Health Econ. 22(2):151–185. , (2006). Investments in cancer genomics: who benefits and who decides? Am J Public Health. 96(11):1960–1964. 38 A C H I E V I N G J U S T I C E I N G E N O M I C T R A N S L AT I O N Gates Foundation. (2006). Global fund announces $500 million contribution from Bill and Melinda Gates Foundation.

2006). Drug discovery in jeopardy. J Clin Invest. 116(11):2837–2842. DiMasi JA, Hansen RW, Grabowski HG. (2003). The price of innovation: new estimates of drug development costs. J Health Econ. 22(2):151–185. , (2006). Investments in cancer genomics: who benefits and who decides? Am J Public Health. 96(11):1960–1964. 38 A C H I E V I N G J U S T I C E I N G E N O M I C T R A N S L AT I O N Gates Foundation. (2006). Global fund announces $500 million contribution from Bill and Melinda Gates Foundation.

16(1):39–57. Khoury M, Gwinn M,Yoon P, Dowling N, Moore C, Bradley L. (2007). The continuum of translation research in genomic medicine: how can we accelerate the appropriate integration of human genome discoveries into health care and disease prevention? Genet Med. 9(10):665–674. [NIH] National Institutes of Health. (2001). NIH Policy and Guidelines on The Inclusion of Women and Minorities as Subjects in Clinical Research – Amended, October, 2001. gov/grants/funding/women_min/guidelines_amended_10_2001.

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